Asher James Congenital Heart Disease & Thrombosis Foundation provides advocacy and awareness in congenital heart defects and children's blood clots and supports bereavement through Olivia's Blankets.
Our son Asher was born with several congenital heart defects. After having surgery at 11 days old, he started developing blood clots at 4 weeks old. For two weeks, Asher fought these clots while hematologist used different methods of breaking the clots a part. His doctor told us that there was little awareness and at the time no research being done for children with blood clots. She was calling different hematologist across the country to find out different treatment options. After losing Asher, we knew we had to create a foundation to get awareness out to parents so that they weren't blindsided the way we were when our son developed blood clots. We never knew blood clots were something that could happen in children, let alone infants.
Now we work with Pediatric Congenital Heart Association (PCHA) IL, Ann & Robert H. Lurie Children's Hospital and University of Iowa to spread awareness in children's blood clots and are working on spreading awareness in other areas so that everyone knows the signs and symptoms of blood clots.
Many times children with congenital heart defects (CHD) are the ones that develop these clots the most because they are immobilized after surgery.
*We do not fund medical treatments for children and we do not give medical advice. Please consult a doctor if you need medical advice.