We just returned from Capitol Hill where we spoke to Senate staff about Asher's story. We let them all know that blood clots are happening to children. We told them "People think that blood clots don't happen to children but they do. Think of all the kids with cancer, heart disease and are hospitalized for other illnesses. They are the ones at risk for these blood clots."
After the Congressional briefing, I asked the National Blood Clot Alliance to add a brochure on blood clots in children and because of asking, there was a brochure (front and back) in the Senate briefing packet.
Read more about this trip here.
To learn more about the briefing we attended through the National Blood Clot Alliance please go to this link and view our speech in the video below. We are very grateful and honored to have been a part of this event to educate everyone on blood clots happening in children and to share Asher's Story.
On Friday, March 14th we were one of the speakers at a Congressional Briefing on Capitol Hill for Blood Clot Awareness Month. The National Blood Clot Alliance asked us to attend to share Asher's Story.
The week prior we had our first ever Children's Thrombosis Awareness Day and we learned that because of our awareness day, National Blood Clot Alliance added a section about blood clot's in children. They never before had this brochure on their website.
Because of telling Asher's story and opening the eyes of everyone that heard it, we were invited by the President of the National Blood Clot Alliance to attend their Board of Director's meeting next month in Chicago. They weren't even aware of this huge problem in children.
Asher's story and the pictures of how the blood clots changed him really opened the eyes of all those that saw the pictures and heard his story. These clots are happening to children and more research is needed and better treatments are needed and more awareness needs to be spread!
To read the full details of our trip, click here.